February 2017 update

After my recent problems…Debilitating headaches, vision problems and general ‘full-headedness’, I seem to have plateaued.

I still get vision problems but only when I have been looking at the PC screen for hours on end. The nauseous feeling seem to be there almost every day and I just ache at the back of my head.

For months now, I have been convinced that my Colloid Cyst has come back. It doesn’t matter how many times my wife tells me that it hasn’t and that I am being  a drama queen, I just feel that it has.

I have no medical knowledge to back this up but on the 13th March 2017, I go back to hospital for another MRI and either way, I will have a little bit of closure about the situation.

It could be that I am suffering from that condition that most brain surgery patients go through, the “I know I’ve had an operation to remove (insert the thing) but I just know that it has grown back” scenario.

Not intelligent and completely without any basis but I just can’t help it.

Blood Test

The constant shit feeling that I have been experiencing led me to the doctor. Bearing in mind that I went to the doctor just twice in 20 years before I was diagnosed with a Colloid Cyst, it’s still a big deal for me to go.

A blood test was arranged and as I write this, the test has come back ok.

My cholesterol is a little too high but my blood pressure, liver, kidney and test for diabetes have all come back fine so the final piece of my jigsaw is the MRI on the 13th.

Once I have the results of the MRI, I will make another post.

 

 

 

 

 

Symptoms of a Colloid Cyst

My symptoms may or may not be typical but all I can do is write about how it was affecting me prior to my diagnosis.

In mid 2013 I started to get dizzy spells. Usually though, it would manifest itself only when I was bending down and getting up quickly so I simply put it down to the sudden change in movement.

Over time they gradually became more frequent, about 2/3 a week as opposed to 2 a month at the beginning They were also becoming worse and would take slightly longer to recover from…a minute or two instead of the previous 20 seconds.

The worst feeling though and the one that finally led me to the doctors was the strange and uncomfortable feeling of what I described as “full head-edness”. Later on, this would be diagnosed as Hydrocephalus.

It was like my head was stuffed full of cotton wool and although I was coherent and lucid, the feeling was just so strange and I just knew something wasn’t right, although I never felt there was anything really bad happening.

IMPORTANT – MY MISDIAGNOSIS

When I went to the Doctor, they originally diagnosed me with an inner ear infection and depression (due to the lack of sleep and the pressures of running my own business) and prescribed me Fluoxetine, more commonly known as Prozac, a well known anti-depressant drug.

Incientally, I never took it as I just knew that my problems were not down to being clinically depressed. Fed up, tired and angry but not depressed – even I knew the difference.

The 2nd time I met with them they diagnosed me with Ménière’s Disease (also known as endolymphatic hydrops), a type of inner ear infection that can affect hearing and balance and cause Vertigo.

This was because I also had slight Tinnitus but the reason I had this is because I used to be a mobile DJ and the years of loud music took their toll on me, hence the Tinnitus.

They confirmed their diagnosis that I had Ménière’s Disease the 3rd time I met with them too and only ruled this out after my first MRI, some 6 months after my first visit to the Doctor.

The other major things to note:

The biggest ones for me personally, were my massive mood swings and inability to sleep.

Running your own business is hard. Forget the ‘glory’ stories of guys making millions, I was just trying to put food on the table for my family and I worked at least 12 hours a day in the week and 4 hours each day at weekends.

There was no respite as I had to deal with staffing issues, supplier problems, cashflow problems, etc.

As an aside, I do feel that the massive pressure I was under contributed to the Colloid Cyst. There is no medical evidence of course but using a mobile (cell) phone for at least 4 hours a day every day for the last 20 years or so, must have take its toll in addition to the huge amount of stress I was under.

One day, I threw my PC monitor against the wall. Another day I turned over a desk in the office.

It wasn’t like me and now (in hindsight) I believe that the Cyst was to blame or at least partly to blame.

The first time I went to the doctor was about the ‘fuzziness in my head’ but I also realised when talking to him that I was only getting 3/4 hours a sleep a night. Some days, I wouldn’t even go to bed and I was at my wits end.

Is that a symptom of a Colloid Cyst?

I don’t know but again, it is what affected me at that time and that is all I can tell you.

It got so bad that my family were scared to give me bad news or make me aware of a problem with the business for fear of setting me off.

This just isn’t like me and since the operation, I am back to how I was when my wife and I first met…laid back, pleasant, accommodating and thoughtful.

Not this monster who would scream and shout (and I did) at every minor issue.

Symptoms of a Colloid Cyst in order of the effect on me

  1. Full headedness or fuzziness (numerous times a day every day)
  2. Mood swings (every day)
  3. Inability to sleep (every other day)
  4. Dizzy spells (every few days)
  5. Mild headaches (hardly ever – perhaps 1 a month)

I think you can see from this that the headaches that people speak about in relation to a Colloid Cyst, rarely bothered me.

I keep saying it but the feeling of being fuzzy headed or full headed was the most prevalent. It was just odd. Like my head was permanently under water and that is the feeling and symptom I most remember.

I’m not saying that these symptoms will be the same for everyone, far from it. What I am saying (and what I have learned from my own search for knowledge) is that everyone appears to suffer a different level and different type of symptom.

Sure, nearly all Colloid Cyst sufferers will experience mood swings, dizziness, full headedness and sleep disruption but it does appear that the impact will vary from one case to another.

This is my experience and I hope it helps.