December 2016 update

My initial stupid diagnosis appeared to be correct.

My severe headaches and general ‘feel like shit’moods have definitely subsided in the last week and a bit, due I believe, to me drinking a lot more water.

The headaches which I felt at the back of my head are still there but nowhere near as much as they were, in fact I can now go all day without getting one and when I do, it doesn’t appear to effect my vision as it did before.

I have been drinking a minimum of 3 pints of water a day and have not got into a ritual where I drink 1 pint in the morning when I wake up.

I do it in two stages…Half a pint when I wake (a water jug is next to my bed as I only drink room temperature water) and then half a pint after my shower. The other two pints are then pretty easy to fit in during the day and sometimes I drink 4 pints.

I’ve started exercising more too and this has helped but this could just be due to the fact that I needed to improve my general fitness anyway.

The final thing to mention is that the two crevices on the top of my head, where they entered my skull to get to my brain, are slightly less pronounced than they were previously.

Again, this could simply be a case of me hydrating my brain/body again.

I still don’t feel 100% but I am getting there again I think. All I want to do is get to where I was 6 months ago when I felt absolutely fine and dandy.

More updates to follow shortly.

Why I started this blog

In May 2014 I was diagnosed with a Colloid Cyst and Acquired Hydrocephalus.

On the 20th August 2014 I underwent a Craniotomy and transcallosal craniotomy and excision of Colloid Cyst operation.

The lack of information available at that time was awful, it was almost as if this condition didn’t exist because there was so little information available on the internet.

Usually, if you look up any condition, disease, operation or similar, you will find rafts of information but for a Colloid Cyst? Hardly anything.

My wife was going out of her mind with worry, I was being brave until the day of the operation and the reality and enormity of the situation hit me and all in all, it was a scary time for us all, not knowing what would happen next.

So I decided I would document my recovery process.

  • What my symptoms were before the diagnosis and how they affected my everyday life
  • The diagnosis itself
  • The operation and subsequent recovery period in hospital
  • My return to work
  • My health since August 2014
  • Small issues since the operation
  • My mindset (this is the biggest change)

DISCLAIMER

I’m no Doctor. I have no medical experience whatsoever and I would never, ever want anyone to take what I write here as advice. I DO NOT GIVE ADVICE.

Doctors, Nurses and Neurosurgeons are all brilliant at what they do and I wouldn’t be alive today if it wasn’t for their skill, knowledge, experience and expertise.

My aim is simply to tell you my journey from symptoms, diagnosis, operation, recovery and moving on with my life.

If at least one person takes comfort from what I have written, then that is all I want as there wasn’t a great deal of information that we (my family) could find on this strange, under reported condition.

I will also scan various documents in here that I received from the Neurocentre and Neurosurgeon during the whole process to show you my progress and to of course provide validity to what I am saying.

Best wishes always…Mark